Spaghetti Time

Look ma-no tubes. (in her nose that is) Today was a wonderful day for us. Feeding tube was removed and Kalyn began to eat. It took her a little while to get back into the whole eating thing but once the spaghetti arrived she was ready. She had three servings for dinner and two more for snack tonight. Boy was she happy. We taught her the signs for eat and drink today and she was using them constantly to inform me that I was not feeding her fast enough!

She has a great weekend with Tess-her favorite nurse. We were up in the wheelchair for almost 3 hours today. And best of all- the buddy brigade came through and Kalyn got to visit with Zoe- a 10 year old lovable sheltie. These constant canine visits only serve as a reminder to Kalyn that mommy promised her that we would get a dog if she would just get better and come home. I can't wait to fulfill this promise to her.

On a more interesting note we had a visitor this weekend that was a little unexpected. His name is Joey and apparently he is a frequent visitor of Kalyn's. She tells us that Joey is a "big boy" but not a man and is a ghost who stays on the ceiling in her room often. She stayed awake for the entire night on Friday because she was playing with him and listening to him. She says that he is nice and gives her kisses. She also tells us that he plays with her hair. We have noticed that she keeps on putting her hand on her head for weeks now. I thought that she was hallucinating because of the pain medicine when she first started telling me about Joey. Then one of the nurses that I love who has worked on the unit for over 20 years told me that multiple children have told them about ghost in this particular room. They always say that the ghosts are nice and that they tell them that everything is going to be all right and that they will be okay. FREAKY!! But at the same time comforting. Apparently these "ghosts" have a habit of talking a lot at night and interrupting the children's sleep. The nurse even went so far as to tell me about a night that she was working and saw a shadow at that bedside and went in thinking it was another nurse and found no one there. But Kalyn seems comforted by this presence and that makes me comfortable. We have however "talked" to Joey and asked that he allow Kalyn to sleep at night and only play during the day. And now Kalyn is sleeping better at night.

Keep us in your prayers. We appreciate every single kind word or prayer sent our way. They have helped us get through this trying time and will also aid us in keeping our eyes on the goal- a happy healthy Kalyn.